Advisory Board
Dr. Michael Rafii – (Head of Carrie’s Blueprint Advisory Board.) Principal Investigator of the NIH-funded Alzheimer’s Clinical Trials Consortium–Down Syndrome (ACTC-DS)
Jawanda Mast – National Down Syndrome Congress Grassroots Advocacy Manager
David Tolleson – Vice President-Strategic Alliances for Global Down Syndrome Foundation
Crystal Lotterberry – Co-Founder and Vice President of the National Black Down Syndrome Association
Dr. Moya Peterson, PhD, RN, APRN, FNP-BC – the primary investigator of the Life-DSR project
Dr. Lauren Ptomey, PhD – Co-Director of the Down Syndrome Cohort at the University of Kansas Alzheimer’s Disease Research Center
Keith Smith – Senior Research Associate at KU Alzheimer’s Disease Research Center
Dr. Tamar Heller, PHD – Director of the Institute on Disability and Human Development at the University of Illinois, Chicago.
Dr. Nicole Baumer, MD, MEd – Director of the Anna and John J. Sie Center for Down Syndrome
Dr. Brian Skotko, MD, MPP – Medical geneticist and Director of the Down Syndrome Program at Massachusetts General Hospital
Dr. Kishore Vellody, MD – Professor of Pediatrics; Medical Director, Down Syndrome Center of Western Pennsylvania
Dr. Brian Chicoine, MD -Medical Director of the Advocate Medical Group Adult Down Syndrome Center
Melissa Silverman – self-advocate who considers Carrie a mentor
Connor Robert Long – self-advocate and actor